ENHANCING THE LIVES OF
THOSE AFFECTED BY LEUKODYSTROPHY
OUR MISSION

 

Increasing awareness of the leukodystrophies through education, providing helpful information and resources to families with members currently battling leukodystrophy, and raising funds to aid further research for potential treatments and cures of the leukodystrophies.

OUR STORY

 

When Brooks White was diagnosed with leukodystrophy, his mother came to realize how little information was available about potential treatments, clinical trial opportunities, and how the disease impacted families.  Her experience fostered the desire to help future patients and families impacted by leukodystrophy.

DONATE

Your donation will help fund critical research into treatments and cures, provide direct support to families, and build public awareness of this rare group of diseases.  

 

With your help, we can provide hope-

now and for the future.

WHAT IS LEUKODYSTROPHY?

Leukodystrophy is a rare group of neurodegenerative diseases that affect the white matter of the brain.  These diseases are genetic, progressive, and currently have no cure.  The genetic abnormalities of leukodystrophy cause the irregular development of nerves' myelin sheath, which acts as a protective barrier to the nerves themselves.  Without the healthy development of the myelin sheath, the nerve cells have difficulty sending and receiving electrical signals.  Essentially, this abnormal development causes "exposed wiring" in the brain, significantly affecting the central nervous system's functionality.

Each form of leukodystrophy is directly linked to a specific genetic abnormality, which causes the degradation (or in some cases the overproduction) of the myelin sheath.  While much is known about the genetic causes and clinical features of the multiple types of leukodystrophy, the rarity of the diseases has led to limited awareness and research efforts compared with more well known ailments.

CONTACT US

PO BOX 141038

Broken Arrow, OK 74014

ashley@bcwfoundation.org

 

© 2018 The Brooks Coleman White Foundation, Inc.