© 2018 The Brooks Coleman White Foundation, Inc.

PHYSICIAN SPECIALISTS & HOSPITALS

Physician Specialists By State:

 

Alabama

 

Dr. Sonia Grevenitis 

Mobile Pediatric Clinic

Mobile, AL

(251) 706-8170

California

 

Dr. Harley Kornblum

Department of Pediatrics (Neurologist)

Mattel Children’s Hospital UCLA, Ronald Reagan UCLA Medical Center

Los Angeles, CA

(310) 825-6196

Dr. Raman Sankar
Department of Pediatrics (Neurologist)

Mattel Children’s Hospital UCLA, Ronald Reagan UCLA Medical Center

Los Angeles, CA

(310) 825-6196

Dr. Keith Van Haren
Neurology and Neurological Sciences
Stanford School of Medicine

Stanford, CA

(650) 723-0993

 

District of Columbia

 

Dr. Adeline Vanderver
Neurologist and Director, Myelin Disorders Program
Children’s National Health System

Washington DC

(888) 884-2327

 

Maryland

Dr. Carsten Bonnemann  

Senior Investigator and Chief of the Neuromuscular and Neurogenetic Disorders of Childhood Section
National Institute of Neurological Disorders and Stroke
Bethesda, MD

(301) 594-5496

Dr. S. Ali Fatemi

Director of the Moser Center for Leukodystrophies at Kennedy Krieger Institute

Associate Professor of Neurology and Pediatrics, The Johns Hopkins University

Baltimore, MD

(443) 923-9400

 

Massachusetts

 

Dr. Florian Eichler
Director of Leukodystrophy Service

Department of Neurology, Pediatric Neurology and Neuro-oncology
Massachussetts General Hospital for Children

Boston, MA

(617) 726-6093

 

Dr. Alessandra Biffi

Director of Gene Therapy Program

Dana-Farber/Boston Children’s Cancer and Blood Disorders Center

Boston, MA
(617) 632-2204

 

Minnesota

 

Dr. Marc Patterson

Chair of the Division of Child and Adolescent Neurology

Mayo Clinic

Rochester, MN

(507) 284-2511

 

Dr. Paul Orchard
Medical Director of the Inherited Metabolic and Storage Disease Bone Marrow Transplantation Program

Pediatric Blood and Marrow Transplantation Center
Minneapolis, MN

(612) 626-2961  

Dr. Jakub Tolar 

Department of Pediatrics, Director of the Stem Cell Institute

University of Minnesota Masonic Children’s Hospital  

Minneapolis, MN

(612) 625-2912

 

Dr. Weston Miller
Assistant Professor, Division of Pediatric Blood and Marrow Transplantation

Pediatric Blood and Marrow Transplantation Center

Minneapolis, MN
(612) 626-5768

Dr. Troy Lund
Assistant Professor, Division of Pediatric Blood and Marrow Transplantation

Pediatric Blood and Marrow Transplantation Center

Minneapolis, MN

(612) 625-4185

New York

 

Dr. Mitchell Cairo
Chief, Pediatric Hematology, Oncology and Stem Cell Transplantation

New York Medical College

Hawthorne, NY
Mitchell_Cairo@nymc.edu

Dr. Jill Miller-Horn  

Neurology, Epilepsy and Child Neurology

Stony Brook Childrens

East Setauket, NY

(631) 444-2599

North Carolina

Dr. Joanne Kurtzberg
Department of Pediatrics

Chief Scientific Officer, Robertson Clinical and Translational Cell Therapy Program

Duke Center for Autism and Brain Development

Durham, NC

joanne.kurtzberg@dm.duke.edu

 

Dr. Holly Martin 

Neonatal-Perinatal Medicine

UNC Health Care
Chapel Hill, NC

(919) 966-5177

Dr. Vinod Prasad

Pediatric Bone Marrow Transplant Specialist

Duke Children’s Hospital and Health Center

Durham, NC

(919) 668-0442

 

Pennsylvania

Dr. Paul Szabolcs
Chief, Bone Marrow Transplantation and Cellular Therapies

Children’s Hospital of Pittsburgh of UPMC
Pittsburgh, PA
(412) 692-6740

 

Dr. Maria Escolar 

Director, Program for the Study of Neurodevelopment in Rare Disorders
Children’s Hospital of Pittsburg of UPMC
Pittsburg, PA

(412) 692-9955

Dr. Amy Waldman 

Medical Director of the Leukodystrophy Center and a Pediatric Neurologist

The Children’s Hospital of Philadelphia

Philadelphia, PA
(800) 879-2467 

 

Utah

 

Dr. Clint R Nelson 

Department of Pediatrics (Neurologist)

Intermountain Rock Canyon Pediatric Specialists

Provo, UT

(801) 357-170

 

Dr. Joshua Bonkowsky

Department of Pediatrics, Department of Neurology

University of Utah Health Care 

Salt Lake City, UT

(801) 213-3599

Specialty Hospitals:

Kennedy Krieger Institute

The Moser Center for Leukodystrophies

https://www.kennedykrieger.org/patient-care/patient-care-centers/center-for-leukodystrophies

Children’s Hospital of Philadelphia’s Leukodystrophy Center

http://www.chop.edu/centers-programs/leukodystrophy-center